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Dear jweb friend,
Firstly, we want to say a huge THANK YOU to everyone who joined us for the filming of a very special Shabbat B'Yachad service at Finchey Reform Synagogue. The film will be available for everyone to watch at home when you can't get to synagogue and will be shared with other communities which are setting up inclusive services for themselves. We will be sharing a link to the online film when it is ready, so watch this space!
However, we are writing to you today to tell you about our latest blog from Tamara Mcnamara, a learning disability acute liaison nurse at the Royal Free London NHS Foundation Trust. Going into hospital can be a daunting experience for anyone, but patients with a learning disability are particularly vulnerable on a number of levels. They may find it difficult to understand what is wrong with them, they may have had a bad experience in the past which has made them scared now, their needs may not be understood by the doctors and nurses or they may have several very complex health needs. Most acute hospitals now employ a learning disability acute liaison nurse, who is there to provide support and advice to patients, carers and hospital staff. Tamara has provided us with some excellent resources, so please save this page - you never know when it will come in handy.
If you have tips or ideas to help others deal with hospital visits or stays, please share them with us . We will add them to Tamara's blog to create a one-stop resource for other jwebbers to refer to.
With all good wishes,
Anna and the jweb team
K-News with Easy Read is a round-up of what's new and happening at Kisharon.
If you had a car accident what would you do?
How would the emergency services know that a passenger in your vehicle has special needs?
Jweb has produced a self-cling car sticker which we are pleased to be giving away for FREE! Just send a SAE no smaller than DL (110 x 220 mm) to Jweb, c/o Kisharon, 54 Parson Street, London NW4 1TP.
Read about what's going on in our month by month guide
Norwood are offering FREE Transition Workshops for carers/parents of 14-25 year olds with special needs. Can't get to London? They'll share the information with anyway!
Special Families - dates for your diary
Anyone seeking support, friendship or information can be sure of a warm welcome at Special Families, a group run by parents with children/young adults with special needs. The group is open to parents, grandparents and siblings. Although there are lots of ways to get information and support these days, this group enjoys establishing friendships through meetings – there are six each year - and by keeping in touch through an e-group and on Facebook.
London - Check out the Monday Club October - December 2016 Programme (56.5 KB) programme.
Having a child with special needs brings a host of challenges which parent's face on a daily basis, this can be both physically and emotionally draining.
The Kef Shmooze Group - a new initiative of Kef, offers the mother's of our KEF children a chance to unwind and relax in a caring and supportive environment, providing both emotional and practical support.The KEF Shmooze Group aims to meet on a regular basis.
London - The Jewish Autism Trust has launched a monthly youth group - visit www.jewishautism.org for more information.
- Vote for Kisharon to win a £9k Award for Music Therapy
- The One-Handed Musical Instrument Trust
- Autism Uncut Film and Media Awards
- Autistic Actor wanted - National Autistic Society
- What's happening at Scope? Guest post: Do disabled loo designers see us as a genderless entity?
- Autism-friendly theatre performances
- National Autistic Society - Summer holidays resources to support families
- Looking for a female housemate for a supported living placement in Barnet
- Long-term Advocacy Support Service
- The Judith Trust - NEW Jewish Siblings Network
Ideas rarely happen in isolation...
and life-time advocacy certainly did not. Years of fighting for the rights and needs of people with a learning, physical or sensory disability and autism presented us with the final challenge: what happens to the children when parents are no longer able to care and monitor their welfare? Read this blog from Sharon Schaffer at Larkspur .
Special iApps develop educational apps for children with special educational needs, including autism, Down syndrome, cerebral palsy, hearing impairment and other learning disabilities. In this blog, founder Beverley Dean talks to us about her inspiration for setting up Special iApps and how they can benefit people with learning disabilities.
Understanding Puberty and Sexuality...
read this blog by Dr Laura Drage, a Chartered Clinical Psychologist working in the NHS and privately (offering home visits in North West London) with young people (age 0-18) with emotional, behavioural and/or learning difficulties and their families.
Read this blog...
on solicitors with expertise in disability and SEN cases from Steve Broach, a barrister at Monckton Chambers specialising in public law. Steve's background is in policy and campaigning work with and for disabled children and adults and their families.
Planning for the future? Read this article
... from Kith and Kids founder Maurice Collins: What happens to one’s son or daughter, who has a disability, when we are no longer around?
Transition, Change and Resilience
Read our blog by Chartered Educational and Child Psychologist Hannah Abrahams as she reflects on the changes that Rosh Hashanah and the start of a new academic year bring for families of young children.
Science Fiction & Fact
Our friends at AuKids sent us this great article on The Good and Bad Science of Autism' . We hope you enjoy it...
The Magic Link
Speech therapist and handwriting expert Lee Dein shares her 30 step handwriting programme with us - ideal for children with dyspraxia or dyslexia.
Make 'em Laugh
Debby Elley and Tori Houghton, co-editors of AuKids, share with us their tips for using laughter as a therapist's tool to develop speech and behaviour.
Art Therapy for people with learning disabilities
Art Therapy is an incredibly helpful way of exploring your life, feelings and relationships. Usually you will meet with your therapist on a weekly basis to make art, explore your feelings and develop a relationship that will help you toward self-understanding and improved communication. Read our blog from art psychotherapist Jon Martyn...
Your Bar/Bat Mitzvah Guide
One of the topics we get asked about most frequently here at jweb is chedars (hebrew schools) and bar mitzvah teachers who can accommodate or specialise in working with children and young people with learning disabilities. We'd love to have your recommendations - if you have had a good experience please and help someone else to get the support their child needs. Click through for some of the suggestions and information passed onto us by members of the jweb community....
We are really fortunate to have a fantastic team of site champions to help make jweb a friendly, welcoming place for new visitors. Some are parents and some are professionals working with learning disability. All have volunteered their time to make jweb a success, so we are hugely grateful to them.
You will find our site champions on the forums, greeting people and generally getting involved. Do look out for them and say hello.