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Start Here: Support for Families where someone has been diagnosed with a Learning Disability or Medical Condition

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JWeb is a friendly place to find and share news, services, events and information for the Jewish learning disability community.

There are tons of pages of information on service providers, recommended activities and blogs by professionals and community influencers working in the learning disability world. To get you started, here are some quick links to support groups for families and people with special needs across the UK.

The information below is an overview of organisations offering family support or support groups listed on JWeb. For ease of use, we have organised the information into three sections: non-Jewish (or not specifically Jewish), Orthodox/Charedi and Mainstream Jewish organisation. Within these categories you will find listings for organisations that cater for children, adults and everyone.

Non-Jewish (or not specifically Jewish) organisations

Services for Children 

Name of service:  Kith and Kids

Who they are and what they do: 

  • Supports children with a learning disability and/or autism, their siblings and their parents to take part in the community.
  • Provides a Family Support Service that helps parents and siblings by introducing them to other parents and siblings as well as providing individual information and support.
  • Provides an Outreach Service that provides information, support and training to families, carers and organisations.

 

Where in the country?
The Outreach Service is UK-wide. Other services and activities are London-based, but contact Kith and Kids to check this - on 020 8801 7432


Name of service:  Contact a Family

Who they are and what they do: 

  • Provide information, advice and support for families where someone has been diagnosed with a learning disability or medical condition.

 

Where in the country?
London


Name of service: Parents’ Advice Centre

Who they are and what they do: 

  • Provide support to all parents and primary carers who have issues and concerns relating to or affecting their children.

 

Where in the country?
Northern Ireland


Name of service:  Resources for Autism

Who they are and what they do: 

  • Provide a range of practical services for people with a diagnosis of autism and their families, including a sibling support group.

 

Where in the country?
London and Birmingham


Name of service: Special Families

Who they are and what they do: 

  • A group run by parents with children/young adults who have special needs. They welcome everyone at their meetings, and offer support, friendship, and information that may be helpful for a family member of someone with special needs. The group is open to parents, grandparents and siblings.

 

Where in the country?
London


Name of service: The Mind Practice 

Who they are and what they do: 

  • A coach/therapist, Sarah Doll-Steinberg, works with people with ADHD/ADD to help them with self-organisation.  She also provides parent coaching to help parents to understand their children's strengths and challenges, and develop strategies and structures to help them learn new skills.

 

Where in the country?
London W1 and NW8 or via telephone or Skype

Adults

Name of service:  Different Together

Who they are and what they do: 

  • Provide a safe, supportive and understanding community for the neurotypical (non autistic) partners of people who have been diagnosed with Asperger’s Syndrome or may be on the autistic spectrum, to gain a greater understanding of the challenges faced by their partner and themselves within the relationship.

 

Where in the country?
Cornwall, Devon, Edinburgh, Exeter, Leeds, London, Northampton, Worcester

 

Everyone

Name of Service: Enable Scotland

Who they are and what they do: 

  • Provides support for families where someone has been diagnosed with a learning disability – family members, carers, the person with a learning disability.  Enable Scotland provide information, raise funds to support families who have nowhere else to turn, provide personalised support for the person with a learning disability to make connections and be active within their community as an equal member of society.

 

Where in the country?
Scotland


Orthodox/Charedi Jewish Community Organisations

Children 

Name of Service: Ezer Layeled

Who they are and what they do: 

  • Provide family support and advice and individual school and hospital support to children and young people up to age 19 with a range of special educational needs who require education and care within a traditional Orthodox Jewish environment.

 

Where in the country?
Manchester


Name of Service: Ezer Leyoldos

Who they are and what they do: 

  • Ezer Leyoldos provides support to vulnerable children and families from the Charedi community, in order to relieve difficulties, prevent problems developing and restore stability to troubled families.


Where in the country?
London


Name of service: Lubavitch Children's Centre

Who they are and what they do: 

  • Primarily for children, but serving all members of the Orthodox Jewish/Charedi community, Lubavitch Children’s Centre offers day care, clinical services (including speech and language therapy) and family support, including financial support, support for families of children with special needs and parent/toddler activities.

 

Where in the country?
London – Stamford Hill

Adults

Name of service: Tikva

Who they are and what they do: 

  • Tikva runs services for parent or carers for adults aged 16+ with learning disabilities within the Orthodox Jewish community. This comprises a support group and relaxation sessions for carers as well as respite opportunities and breaks for their children with disabilities.

 

Where in the country?
London

Everyone

Name of service: Ezer North West

Who they are and what they do: 

  • Ezer North West provides counselling, advice, advocacy, information and other support to the Orthodox Jewish community, including those with learning disabilities.

 

Where in the country?
London – Golders Green


Name of service: Binoh of Manchester

Who they are and what they do: 

  • Community based services for the Orthodox Jewish Community

 

Where in the country?
Manchester


Name of service: Yad Voezer

Who they are and what they do: 

  • Yad Voezer (A Helping Hand) was set up in 1975 to offer improved services for children and adults with a disability. Its services are run in accordance with Orthodox Jewish tradition. 
  • Yad Voezer is currently in the process of building a large Day Centre in Stamford Hill to provide vocational and leisure services, family support, clubs and social activities.

 

Where in the country?
London


Mainstream Jewish Community Organisations

Children 

Name of service: Camp Simcha
Who they are and what they do: 
  • Camp Simcha offers family respite through summer camps and schemes, family and sibling support, family liaison, big brother and sister volunteers, outings and parties as well as a very special Summer Camp USA!
  • They can also help with hospital transportation.
  • They do not have a specific learning disability provision - all of their services are inclusive.

 

Where in the country?
London, Manchester, Gateshead


Name of service: In Touch

Who they are and what they do: 

  • Provide support for parents/carers and siblings of children with moderate to severe disabilities through the provision of education, training and recreational facilities.

 

Where in the country?
London and Manchester


Name of service: Norwood

Who they are and what they do: 

  • Provide a wide range of family support, including social work support to parents, giving them advice and information about how better to cope with their child’s needs and support them in other ways, weekly support groups, where parents can share personal experiences and challenges in a confidential, non-judgemental and safe space with people who understand their feelings and what they are going through, parenting courses, welfare advice and a siblings group for children who have a sibling with special educational needs or disability to offer them a safe space to express their feelings, share experiences with young people facing similar situations, make friends and have fun.

 

Where in the country?
London 


Name of service: The Fed Children and Family Service

Who they are and what they do: 

  • Social support for families under stress.

 

Where in the country:
Manchester

Adults

Name of service: Jewish Care
Who they are and what they do: 
  • A charity that provides a wide range of practical and social support for Older People, People with mental health issues and people with physical and sensory disabilities within the Jewish Community.
  • They also run support groups and have a dedicated support and advice line (JC Direct).

Where in the country? 
London and the South East


Name of service:  Jewish Care Scotland

Who they are and what they do: 

  • Jewish Care Scotland offers advice and practical help to carers and people with the responsibility of looking after a relative or friend.
  • Services include day centres, care in the community and social activities for (mainly) people in the Jewish community who are elderly or have physical disabilities.

Where in the country?
Scotland – mainly Glasgow
 

Everyone

Name of service:  Helping Hands

Who they are and what they do: 

  • A volunteer service that provides practical and emotional support for the Jewish community.  The support is tailored to the person or family who needs the support.

Where in the country?
Brighton and Hove


Name of service: JEMS 

Who they are and what they do: 

  • A relaxed, confidential and social group that supports Jewish people diagnosed with Multiple Sclerosis and their partners.

 

Where in the country?
Edgware (North London)


Name of service: Jewish Deaf Association

Who they are and what they do: 

  • JDA is dedicated to supporting everyone who is deaf or hard of hearing - people of all faiths and none, at all stages of life.
  • JDA is an independent, national charity offering professional support services, information and a range of social, cultural and educational programmes to the Deaf community, people with all levels of hearing loss, people experiencing Tinnitus, their friends, families and those caring for them.

 

Where in the country?
North Finchley (North London)


Name of service: Merseyside Jewish Community Care

Who they are and what they do: 

  • Provides information, advice and practical support to children and adults with a learning disability and their families. 

 

Where in the country?
Liverpool/Merseyside


Name of service: The Fed: Community Services for Adults and Older People

Who they are and what they do: 

  • A Jewish voluntary organisation that offers adult social care services to people living in the community, including support for carers.

 

Where in the country?
Manchester

Written by: The JWeb Team